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Happy new year to everyone and your families! I hope 2024 is as good (or better!) than 2023. As I look back on this past year I can honestly say that I'm happy with the direction Ostomy Toronto is headed. In 2023, we donated to the two food banks, as well as Mount Sinai Hospital; we helped fund the development of a short film about living with an ostomy (check out the trailer here) that will be out later this year; we also helped fund The International Fashion Encounter fashion show in Toronto that showcases people with ostomies.
All of our other programs are still running throughout 2024 if you have a child or know of anyone under 18 with any type of ostomy, we will help pay for a day camp of your choice. For example: figure skating camp, baseball camp, or anything else.
We also still have funds set aside for the Ostomy Canada Youth Camp - unfortunately last summer there were no kids from Toronto that went. This is something we offer every year, so if you know of any youth living with an ostomy please pass the word along. Ostomy Toronto will continue in this direction as well as support our community in any way we can.
Including our monthly zoom meetings:
Open Forum/Peer Support Meeting January 16 at 7:30pm
Recently McKin Health sent me some samples of Marlen Ostomy Pouches. I use 1 piece so
that's what I was sent. Amy from McKin Health told me that they are very much similar to the big 3 companies we're used to. My review of the Marlen 1-piece shallow and deep convex overall a very good product; all my samples lasting 7 days with no issues, I could not feel the flange on my skin (which is very important for me). To me, these are a good alternative and similar to the great products other companies have. I'm not sure on pricing, but you can order from myostomy.ca and they'll be happy to help you with any questions you may have.
I'm enjoying the nice weather these last few weeks, but hopefully we don't get too much snow to make up for it!
I hope everyone has a healthy and happy 2024.
Thanks for your support,
Jim Fitzgerald
President
Ostomy Toronto
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January 16: Open Forum/Peer Support Meeting |
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REMINDER: Ostomy Toronto uses Zoom for our monthly meetings and you can also join via phone. |
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Join Ostomy Toronto for our Open Forum Meeting on Tuesday, January 16 at 7:30pm EST. Engage with other ostomates, caregivers, and friends and family of Ostomates. All are welcome!
You're invited to join an online meeting:
Title: Ostomy Toronto's Open Forum Meeting
Time: Tuesday, January 16, 2023, 7:30 PM EST
Click here for meeting info & links
Be sure to click on the specific meeting date for the individual meeting link, or have meeting links emailed directly to you.
Hope to see you there!
Please note: Any and all political topics, or topics not related to living with Ostomy are not permitted at Ostomy Toronto's Open Forum Meetings. We appreciate your cooperation and understanding.
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Adapted from a novel written by Ontario author and ostomate, Raimo Strangis, Stuck is a short film by Stagg Forrest Films, a female-run production company in Toronto:
"A life altering surgery has Rai shutting himself off from the world and giving up his dreams. Little does he know that now is the time he needs people and music the most."
Awhile back we featured Raimo, who had recently finished writing his novel, With Little Means. The main character has an ostomy, and while the story retells the early obstacles that Raimo himself had faced with colitis, ultimately the tale takes a fictional turn along the way:
“My name is Raimo Strangis, I am an author and songwriter living in Innisfil, Ontario. I was a sufferer of Ulcerative Colitis for over ten years. I say was, because I finally made the difficult decision to have Ostomy surgery, and I have to tell you, I couldn't be happier. Back in my early twenties I was an aspiring musician touring the Toronto music scene. My colitis was so severe, I had to give up on my musical dreams. For ten long years, I tried all the medications I could, stubbornly avoiding my surgery because of the stigma of being someone with "a bag". But with the support of my family and friends, I decided I couldn't live that way anymore, and decided to do it. It was the best decision of my life. I no longer had to avoid trips or outings with friends, I no longer had to know where all the bathrooms were at all times, and my anxiety and depression has diminished. Writing is my new passion, and in my latest novel, the main character has an ostomy. The story depicts my early colitis obstacles, then takes a wonderful fictional turn and I get to relive my rock star dreams. I wrote this book to inspire others to always follow their dreams and to shine a light on the stigma of our disease. I am always available to chat if anyone is suffering the way I did and just needs someone that can relate.”
The Teaser-Trailer for Stuck can be viewed here
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Share your Story with Ostomy Toronto! |
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If you would like to share something about yourself, and your life with an ostomy, tag @ostomytoronto in your social media posts, or email a short blurb along with a photo of yourself to info@ostomytoronto.com.
We'd love to hear from you! Our goal is to feature as many people as possible in hopes that the stories will help or inspire those who are new to our amazingly supportive community. |
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Nikki aka @nikkimarieloveee shares:
“This is my healthy.
Without a diseased colon ripping itself to shreds.
Without ulcers riddling my insides constantly.
Without blood appearing in the toilet every bathroom trip.
Without eating food and feeling it turn to glass in my stomach.
Am I still chronically ill? Yes, I will always have IBD and I will always have Ulcerative Colitis.
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But this Ostomy Bag? This second chance? This lifesaver? (Even though we don’t always get along and I carry grief over how this all happened - and I probably always will)
This is my healthy.
And others may look at it and think “oh poor thing,” or “she’s got something wrong with her,” but this is MY healthy and MY body and MY new lease on life.
I need my #stoma in order to move forward with my life and living with inflammatory bowel disease. I need my Stoma Bag for so many reasons.
This is my healthy.
It looks different on everyone.
This is how it looks on me.
Whatever your healthy is, it’s valid and beautiful and worthy of praise, however you got (or are getting) there.
Love ya! - Nik 💜"
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Ryan Lengua
Manager, Toronto West Campground
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Sign up for Monthly Meeting Invitations! |
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These emails will
only be sent the mornings of each Monthly Meeting, and Monthly Open Forum/Peer Support Meeting. The emails will only contain the information required to sign in and attend the Ostomy Toronto Meetings.
Please note: If you currently subscribe to our monthly newsletter, you will not be automatically subscribed to these email invitations, you will have to enter your name and email address HERE.
*If you have previously signed up for these invitation emails, you do not need to sign up again.
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Jim Fitzgerald, President
Amy Taylor-Mitropoulos, Treasurer
Susan Uno, Bookkeeper
Urooba Ahad, Director
Glen D'Silva, Director
Michele Smith, Director
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Antonio Pergola, Bingo Volunteer
Linda Hurren, Bingo Volunteer
Jennifer Burnett, Bingo Volunteer
Melissa Aman, Bingo Volunteer
Cindy Zuccaro, Bingo Volunteer
Amanda Caristo, Social Media/Web Manager
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DISCLAIMER
The information contained in this Newsletter is presented for informational purposes only. None of the information is a substitute for professional medical care, attention by a qualified practitioner, or product information that can be gained from an ostomy product distributor, manufacturer or management professional, and under no circumstances may it be relied upon as such. Always check with your doctor or Enterostomal Nurse if you have any questions or concerns about your condition or if you are about to start a new program of treatment or management. Ostomy Toronto and the editors of this Newsletter are not responsible or liable, directly or indirectly, for any form of damages whatsoever resulting from the use (or misuse) of information contained in or implied by this Newsletter.
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